What are Non-Standard Notes

An in-depth study for patients and caregivers who aspire to manage their care more efficiently and effectively.

A middle-aged man with short brown hair and a salt-and-pepper beard sits quietly at his kitchen table, writing Non-Standard Notes by hand in a spiral notebook. He wears a soft blue-gray sweater and leans slightly forward, appearing thoughtful and deliberate. The surrounding kitchen is warm and homey, with a bowl of lemons on the counter, white subway tiles, and sunlight streaming in from a nearby window, evoking a sense of personal reflection and caregiving.
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The Definition of Non-Standard Notes

Non-Standard Notes are personal observations, thoughts, or summaries created by patients, caregivers, or advocates to improve communication and coordination during a healthcare journey. These notes don’t follow clinical formatting—but that’s exactly the point. They’re flexible, human, and deeply useful.

What Are Non-Standard Notes?

Non-Standard Notes are personal notes created by patients, caregivers, or loved ones to help track, remember, and communicate details about healthcare. They’re not written by licensed professionals. They’re not part of your formal medical record. And they don’t follow any strict format.

But they are incredibly valuable.

These notes can include anything from a list of symptoms to questions for your next appointment, from what a doctor said in the exam room to how a medication made you feel at home. They’re written in your own words, for your own use—and sometimes shared with your provider to make sure everyone’s on the same page.

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Why People Avoid Writing Them

A lot of people hold back from writing down their healthcare experiences. Maybe you’ve felt this yourself.

You’re not sure what to include. You’re afraid of getting it “wrong.” You don’t want to look foolish or overstep. And sometimes, the idea of writing about your health just feels overwhelming.

The truth is, no one ever taught you how to take notes about your care. And that silence can turn into hesitation. But the ability to write clearly about your health isn’t a special skill. It’s something anyone can do—with the right mindset and a little structure.

Why They Matter

Non-Standard Notes help you slow things down. They give you space to process what’s happening. And they give you something to return to when memory gets foggy or emotions run high.

These notes also improve communication. When you walk into an appointment with a few notes in hand—whether it’s a list of concerns, a log of symptoms, or a summary of your treatment so far—you instantly shift the dynamic. You’re not a passive patient. You’re a prepared one.

Over time, these notes can also show patterns. They help you notice what’s working and what’s not. They make follow-ups easier. And they reduce the risk of misunderstanding between you and your care team.

Real Examples of Non-Standard Notes

Here’s what they might look like in practice:

Daily log: “Tuesday: Woke up feeling dizzy. Took meds at 8am. Nausea started around 9:30. Ate light breakfast. Felt better by noon. Same pattern happened yesterday.”

Appointment prep: “Want to ask if fatigue could be related to thyroid. Mention bruises on left leg—don’t remember bumping into anything. Request printout of labs.”

Summary after visit: “Dr. Singh said my EKG was normal. Ordered blood tests to check for anemia. Told me to call if dizziness gets worse. Follow-up in two weeks.”

These notes don’t need to be perfect. They don’t need to sound professional. They just need to be honest, useful, and clear enough for you to understand—and possibly to share.

How to Start Writing Non-Standard Notes

There’s no right or wrong way. You can use a notebook, an app, a piece of paper, or even your phone’s voice memo feature. What matters is that you start.

If you’re stuck, try this:

  • What happened today that I might need to remember?
  • What changed since the last visit?
  • What questions do I want to ask next time?
  • How am I feeling—physically, emotionally, or both?

You can write in bullet points. You can write in full sentences. You can jot down keywords or timestamps. The goal is to make sense of your experience—not to impress anyone.

What Happens When You Use Them

People who get in the habit of writing Non-Standard Notes often describe a shift. They feel more grounded during appointments. They ask better questions. They walk away with clearer answers. And they feel less anxious about forgetting something important.

These notes don’t just help you remember. They help you lead. They help you connect dots. They help you follow through. And they make it easier to ask for what you need without second-guessing yourself.

Even when things are chaotic, your notes can bring structure. Even when you feel uncertain, your notes remind you that you’ve been paying attention.

Final Thought

You don’t need permission to write things down. And you don’t need a title to keep track of your care.

Non-Standard Notes are your space. Your words. Your tool.

And the more you use them, the more confident, capable, and in control you become.

Do you have any questions about your results or how to improve your healthcare proficiency?

Disclaimer: This education was brought to you today by The Patient Better Project Inc., a 501(c)(3) organization dedicated to reshaping the way patients and caregivers navigate care. We are committed to empowering individuals with the knowledge and tools necessary to take control of their health journeys, ensuring that everyone can access the care they need with confidence and clarity.

The information provided here is for educational and entertainment purposes only. It is not intended as, nor should it be considered a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. If you think you may have a medical emergency, immediately call 911 or your local emergency number.