What is Health Literacy Measurement?

An in-depth study for patients and caregivers who aspire to manage their care more efficiently and effectively.

Smiling couple sitting together at home, reviewing medical documents and notes in front of a laptop, symbolizing the process of improving health literacy measurement through self-guided learning. The scene emphasizes patient engagement in healthcare management and the use of online tools to enhance comprehension and navigation of medical information.
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The Definition of Health Literacy Measurement

Health literacy measurement refers to the process of assessing an individual’s ability to comprehend, communicate, and apply health-related information to make informed healthcare decisions.

Traditional health literacy measurements were developed to evaluate how well patients understand medical instructions, manage health information, and engage in their care. However, these tools were primarily designed for healthcare professionals, limiting their accessibility to patients and caregivers.

Health Literacy Measurement: A Guide for Aspiring Self-Health Advocates, Patients, and Caregivers

Understanding how to measure health literacy is critical for anyone seeking to manage their healthcare effectively. Health literacy measurement helps individuals assess their ability to comprehend, communicate, and apply health-related information. This guide will walk aspiring self-health advocates, patients, and caregivers through the concept of health literacy measurement, its historical context, and Patient Better’s innovative approach to making these assessments more practical and accessible.

Historical Tools Used for Measuring Health Literacy

Historically, healthcare professionals used various tools to measure patients’ health literacy. These tools helped assess how well patients understood medical instructions, but they were often complex and required professional involvement.

  1. Test of Functional Health Literacy in Adults (TOFHLA) – Developed in 1995 by Parker, Baker, Williams, and Nurss, TOFHLA measures a patient’s ability to read and understand healthcare-related texts, including prescription labels and medical forms. The primary motive was to assess how functional health literacy affects patient outcomes in clinical settings.
  2. Rapid Estimate of Adult Literacy in Medicine (REALM) – Created in 1991 by Davis, Crouch, Long, and colleagues, REALM assesses a patient’s ability to pronounce and understand common medical terms. It was designed as a quick screening tool for clinicians to estimate a patient’s literacy level and adjust communication accordingly.
  3. Newest Vital Sign (NVS) – Introduced in 2005 by Weiss et al., NVS evaluates health literacy by using a nutrition label from an ice cream container. The motive behind its creation was to provide a brief, easy-to-administer tool that could quickly identify patients at risk of low health literacy.
  4. Health Literacy Questionnaire (HLQ) – Developed in 2013 by Osborne et al., the HLQ was designed to capture a more comprehensive view of health literacy. It assesses multiple dimensions, such as the ability to actively manage health, engage with healthcare providers, and find good health information. Its motive was to provide a broader, multidimensional approach to health literacy measurement for use in both clinical and community settings.
  5. eHealth Literacy Scale (eHEALS) – Created in 2006 by Norman and Skinner, eHEALS measures a person’s perceived ability to find, evaluate, and apply health information from electronic sources. The motivation was to address the growing importance of digital health information and assess individuals’ capacity to engage with online health resources.
  6. Short Assessment of Health Literacy (SAHL) – Developed in 2010 by Lee, Stucky, Lee, Rozier, and Bender, SAHL was created to provide a quicker alternative to traditional assessments like TOFHLA and REALM. It evaluates a person’s ability to understand and pronounce common medical terms in both English and Spanish. The motive behind SAHL was to offer a brief, reliable tool for healthcare professionals and researchers to assess health literacy efficiently, without requiring significant time or resources., NVS evaluates health literacy by using a nutrition label from an ice cream container. The motive behind its creation was to provide a brief, easy-to-administer tool that could quickly identify patients at risk of low health literacy.

Limitations of Traditional Health Literacy Tools

While traditional tools provided valuable insights, they had several drawbacks:

  • Professional Dependency: These tools were designed for healthcare professionals to use, not for patients to assess themselves.
  • High Cost: The need for professional administration increased costs and reduced accessibility.
  • Lack of Immediate Solutions: Traditional tools only measured literacy without offering patients ways to improve their skills.

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Patient Better’s Cost-Effective Solution Created from the Demand for More Efficient Care

Recognizing the shortcomings of traditional health literacy tools, Patient Better created the Healthcare Proficiency Challenge to fill a critical gap in patient education. While older tools relied on rote learning—testing surface-level comprehension without offering actionable solutions—Patient Better’s approach is rooted in Meaningful Learning. This ensures that participants are met where they are in their healthcare journey, allowing them to engage deeply with content that is immediately relevant to their needs.

Unlike rote learning, which encourages memorization without long-term understanding, Meaningful Learning helps individuals build essential skills that are applicable in real-life healthcare situations. Participants not only assess their current level of healthcare proficiency but also receive tailored guidance on how to improve key areas, such as navigating medical portals, preparing for appointments, and maintaining personal health records.

Patient Better’s Healthcare Proficiency Challenge transforms what was once a passive assessment process into an empowering educational experience. By focusing on actionable outcomes, it equips participants with the confidence and skills needed to manage their healthcare effectively.

How the Healthcare Proficiency Challenge Works

The Healthcare Proficiency Challenge allows patients and caregivers to assess their own proficiency in healthcare management and navigation independently. It is free to use, easy to access, and provides immediate feedback. After completing the challenge, participants receive personalized guidance on how to improve their healthcare management and navigation skills.

Key areas of improvement include:

  • Navigating Healthcare Portals: Learning how to access, understand, and use medical portals effectively to track appointments, lab results, and other important information.
  • Preparing for Medical Appointments: Gaining skills to organize health information, identify key concerns, and communicate effectively with healthcare providers.
  • Maintaining Personal Health Records: Understanding how to document and organize healthcare-related information, such as visit summaries, test results, and provider instructions.
  • Effective Communication: Developing strategies to engage in productive conversations with healthcare providers, ensuring mutual understanding and better health outcomes.

Benefits of the Healthcare Proficiency Challenge

  1. Free and Accessible: Unlike traditional tools, the Healthcare Proficiency Challenge is free for all users.
  2. Patient/Relationship-Centered: Designed specifically for patients and caregivers, it empowers them to take control of their healthcare journey by using the relationship-centered care model. This approach was infused to unite patients, caregivers, and healthcare providers, ensuring seamless collaboration and support throughout the healthcare experience.
  3. Immediate and Actionable: Participants receive practical steps to improve their proficiency right away.
  4. Cost-Effective for Healthcare Systems: By reducing the need for professional administration, it lowers costs for healthcare providers.

Why This Matters for Patients and Caregivers

For aspiring self-health advocates, patients, and caregivers, understanding health literacy is essential for managing care effectively. The Healthcare Proficiency Challenge provides a practical, user-friendly way to measure and improve health literacy, leading to better healthcare experiences and outcomes.

Key Takeaways

Traditional health literacy tools have historically played an important role in research and clinical settings, but they were not designed for widespread use by patients. Patient Better’s Healthcare Proficiency Challenge fills this gap by offering a free, accessible, and actionable solution. This innovative approach not only empowers individuals to become more proficient in managing their care but also supports healthcare providers by fostering a more informed and engaged patient population.

Do you have any questions about your results or how to improve your healthcare proficiency?

Disclaimer: This education was brought to you today by The Patient Better Project Inc., a 501(c)(3) organization dedicated to reshaping the way patients and caregivers navigate care. We are committed to empowering individuals with the knowledge and tools necessary to take control of their health journeys, ensuring that everyone can access the care they need with confidence and clarity.

The information provided here is for educational and entertainment purposes only. It is not intended as, nor should it be considered a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. If you think you may have a medical emergency, immediately call 911 or your local emergency number.